Resources for caring for someone with Dementia

Caring for a parent with dementia can be a challenging and emotional journey. Here are some resources that may be helpful for families in this situation: 

"The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss" by Nancy L. Mace and Peter V. Rabins. This is a widely recommended book that offers practical advice and emotional support for families caring for someone with dementia. 

"The Alzheimer's Association" (alz.org) is a great resource for families dealing with dementia. They offer information about the disease, tips for caregivers, and local support groups. 

"AARP" (aarp.org) also offers a section on caregiving that includes articles, checklists, and videos on caring for someone with dementia. 

"The Family Caregiver Alliance" (caregiver.org) provides information, resources, and support for family caregivers, including those caring for someone with dementia. 

"The National Institute on Aging" (nia.nih.gov) has a section on dementia that includes information on symptoms, diagnosis, treatment, and caregiving. 

"Alzheimer's & Dementia Weekly" (alzheimersweekly.com) is an online newsletter that provides news and information about dementia care, research, and advocacy. 

"The Alzheimer's Foundation of America" (alzfdn.org) offers support, education, and resources for families dealing with Alzheimer's disease and other forms of dementia. 

"Caring.com" is an online resource that offers information and advice on a range of caregiving topics, including dementia care. 

"The Lewy Body Dementia Association" (lbda.org) offers resources and support for families dealing with Lewy body dementia, which is a common form of dementia that often goes undiagnosed. 

"The Dementia Society" (dementiasociety.org) provides information, resources, and support for people living with dementia and their caregivers. 

RHODE ISLAND RESOURCES 

There are several resources in Rhode Island that can assist caregivers of dementia patients. Here are a few:

Oakley Home Access is a team of experts including an Occupational Therapist and Contractor licensed in Rhode Island, Massachusetts and Connecticut. They specialize in home safety services to achieve fall prevention, increased accessibility, and aging-in-place. Their services cater to a diverse range of community members, from children with special needs to elderly individuals who wish to remain in their homes. They offer a wide variety of modifications and adaptive equipment such as stair lifts, wheelchair ramps, grab bars, tub cuts, stairway handrails, and custom entrance railings. They can also provide complete remodels to make homes safer and more accessible.  https://www.oakleyhomeaccess.com/

Alzheimer's Association Rhode Island Chapter: This organization provides education, support, and resources to individuals and families affected by dementia. They offer support groups, educational programs, and a 24/7 helpline. You can visit their website at alz.org/ri or call their helpline at 800-272-3900.

Rhode Island Department of Elderly Affairs: This department offers a range of services and programs for seniors and their caregivers. They have a caregiver support program that provides respite care, counseling, and other services. You can visit their website at aging.ri.gov or call their helpline at 401-462-3000.

Hope Hospice & Palliative Care Rhode Island: This organization provides hospice and palliative care services to patients and families in Rhode Island. They have a dementia care program that offers support and resources to caregivers. You can visit their website at hopehealthco.org or call their helpline at 401-415-4200.

Rhode Island Office of Healthy Aging: This office provides a variety of resources and services to seniors and their caregivers, including caregiver support groups and respite care. You can visit their website at aging.ri.gov or call their helpline at 401-462-3000.

Caregiver Homes of Rhode Island: This organization provides support to caregivers of elderly or disabled individuals, including those with dementia. They offer in-home care services and support groups. You can visit their website at caregiverhomes.com or call their helpline at 877-797-6976.

These resources can provide valuable information and support for families caring for a parent with dementia. It is important to remember that you are not alone, and there are resources available to help you through this difficult time.